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What you will learn about
Haemoglobinopathy disorders are one of the most common inherited genetic diseases in the world, predominantly occurring in malaria prevalent countries. With the changing patterns of migration and multi-ethnic origin of individuals within Australia, midwives need a greater understanding of these disorders.
Within Australia we have no national screening programme, and thus no standardised approach to screening and care, nor do we have an understanding of the scale of the problem. This session will provide an introduction and overview to midwives to enable a broad understanding of:
- Physiology of haemoglobin disorders
- Basic genetics
- Key haemoglobinopathies
- Principles of screening
- Clinical implications for women and their infants
- Implications for midwifery care
This will help midwives to evaluate local practice, in relation to screening and care of women with suspected, or confirmed heamoglobin disorders.
A message from the presenter
I have always held the ambition of becoming a nurse and started on that path in 1983 in a district general hospital in the UK, and laid my altruistic foundations down through a traditional training, which taught me how to care with pride, safety and quality uppermost. I have worked in progressive posts as a nurse, midwife and a Nursing Officer within the British Army, and moved to Australia in 2012 to firmly establish patient blood management within a tertiary obstetric hospital.
Several years ago, I completed my Masters in Health Professional Leadership which has strengthened my ability to lead and influence clinical practice through the empowerment of others.
My current role as Clinical Nurse Consultant unites my other passions of clinical haematology, transfusion medicine and evidence based practice, and have published 5 papers within peer reviewed medical journals to date. In the last 2 years, I have taken over the responsibility of haemoglobinopathy screening within our centre, and my focus has been to simplify and streamline what is perceived as a very complex problem and process.
I am a member of the Australian and New Zealand Society of Blood Transfusion, and am very proud to represent the nursing profession as a member of the council, as Honorary Treasurer, and in addition serve on the national Clinical Practice Improvement Committee.
I look forward to discussing this important topic with you, and closing the knowledge gap on Haemoglobinopathy disorders within Australia.
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